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2011年12月21日星期三
Global Gene history Project To Distribute Thousands of Donated Blue Anklet bracelets To Children
DANA POINT, Calif., February 8, 2011 – February 28, 2011, is Rare
Disease Day, but at the Global Gene history Project, it's rare disease awareness day
every day of the year. Prior to Rare Disease Day 2011, the Global Gene history
Project will be calling awareness of the lack of prescriptions available for millions
of men and women suffering from chronic, life-threatening and fatal rare diseases through Tresor Paris Venus Bracelets Remalard its 7, 000 Anklet bracelets for Hope™ and Wear That you Care™ awareness
campaigns.
The 7000 Anklet bracelets for Hope™ campaign is designed around the color blue and
a denim jeans theme, which is just about the unifying symbol of a cure for all
those who have been handled by rare diseases. Since April 2010, numerous
companies, jewelry designers, artists, crafters, church groups and other
volunteers have been working tirelessly to produce unique blue anklet bracelets to be
distributed to children suffering from rare diseases and their parents prior to Nike Shox R5 Men Shoes-010 Rare Disease Day 2011.
"We are pleased to all of our 7, 000 Anklet bracelets for Hope™ participants who have
donated materials and anklet bracelets and who are joining the global movement to
advance the fight against rare diseases and disorders, ” said Nicole Boice,
Founder, Global Gene history Project. “The blue diamond designs we have received for
children and parents are remarkable and each one represents the uniqueness of
one of the 7, 000 rare diseases. ”
“The Global Gene history Project stands out a light where one is sorely needed, providing
children with rare diseases and their own families badly needed connections, support,
awareness and hope for the future, inch said Amanda Royce-Hale, Royzle Designs.
“I am privileged to contribute to this worthwhile cause and work to help the entire Trek Leopard German Chamption Cycling Jerseys And Bib Short rare disease community. ”
Drug Crisis: 95% of Rare Diseases Have no FDA Approved
Treatments
According to statistics from the National Institutes of Health (NIH), there are
approximately 7, 000 different rare diseases that together affect over 25 million
Americans and around two hundred and fifty million people globally.
It is also estimated that 80% of rare diseases are caused by ancestral flaws, and
according to the Kakkis EveryLife Foundation, 95% of rare diseases do not have
any FDA approved prescriptions. Since the Orphan Drug Act was enacted 28
years ago in Economy is shown 1983, only 352 new drugs have been approved by the FDA
for all rare diseases combined despite rewards by the government.
“We are privileged to have an chance to help support the 7, 000 Anklet bracelets for michael kors silver watches
Hope™ campaign, ” said Whitney Taylor, Happy Mango Drops. “Rare diseases
and disorders leave millions of children and families without a cure for treatments
and by supporting this project we mean to do our part to increase global awareness
and show the rare disease community how much we care. ”
"There is nothing more amazing to me as an artist than the power of creativity to
uplift, explain to and illumine, ” said Margot Potter, author, designer and the
Creative and Education Coordinator for Jewelry Television's Gem School. “I'm a
big believer in small kindnesses having great impact. I am privileged to support
this cause. inch.
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